Congratulations on your new baby! Caring for a child with a cleft can be overwhelming at first, but there is plenty of guidance available. So take a deep breath and put on your game-face, it's training time.
- Written for new parents by parents who've been there - check out our Feeding Guidelines
- Do you Facebook? Check out these great groups! And check to see if your state has a local cleft group!
- Like forums? Baby Center Cleft Lip/ Cleft Palate is a great group for info and support!
In cooperation with Kids With Clefts - Utah and Primary Children's Medical Center, we are proud to offer these Feeding Guidelines. Check back for additional materials in the near future. Experienced parents are encouraged to use these resources to provide training where it is needed in their communities. Nursery & NICU staff, daycares, even family members are always happy to learn how to provide the very best care. Together, we can make sure that every baby is able to get the nutrition they need, regardless of the type/severity of cleft.
Hailey is a 22" doll with an open unilateral cleft lip and palate who is ready to eat! She is a great hands-on teaching tool for nursery staff, new parents, and volunteer trainers (see below.) Her mouth isn't too deep, but the cleft palate (with bifurcated uvula) is clearly visible. Useful for practicing sitting-up feeding position and explaining milk flow when no suction is present. Comes with a list of Feeding Guidelines. The cleft is open to the interior of the doll, not suitable for children. Medical & training professionals, please contact TinyWideSmiles@gmail.com for pricing information.